Provider PGx Resources

Duke University Institute of Genome Sciences and Policy:

http://www.genome.duke.edu/research/genomic-medicine/areas/pharmacogenomics/education/consumers/

National Genetics and Education Development Centre: Pharmacogenetics in Healthcare:

http://www.geneticseducation.nhs.uk/pharmacogenomics-in-healthcare

UK Pharmacogenetics and Stratified Medicine Network:

http://www.uk-pgx-stratmed.co.uk/

PharmGKB:

http://www.pharmgkb.org/

Provider PGx Resources

Duke University Institute of Genome Sciences and Policy:

http://www.genome.duke.edu/research/genomic-medicine/areas/pharmacogenomics/education/consumers/

National Genetics and Education Development Centre: Pharmacogenetics in Healthcare:

http://www.geneticseducation.nhs.uk/pharmacogenomics-in-healthcare

UK Pharmacogenetics and Stratified Medicine Network:

http://www.uk-pgx-stratmed.co.uk/

PharmGKB:

http://www.pharmgkb.org/

Pulmonary Support Resources

  1. COPD Foundation – https://www.copdfoundation.org/
  2. American Lung Association – https://www.lung.org/
  3. COPD Step by Step – https://www.copd.com/
  4. Living with COPD – https://www.inspire.com/groups/
    american-lung-association-copd/
  5. Breathe California – https://www.lungsrus.org/
  6. Second Wind STL –  https://secondwindstl.org/
  7. Pulmonary Fibrosis Foundation – 
    https://www.pulmonaryfibrosis.org/
  8. National Heart, Lung, And Blood Institute – https://www.nhlbi.nih.gov/
  9. Lungs & You – https://www.lungsandyou.com/
  10. Pulmonary Hypertension Association – https://phassociation.org/
  11. Scleroderma Foundation – https://www.scleroderma.org/
    site/
    SPageServer/#.X3Ecz2hKhEY
  12. Hermansky-Pudlak Syndrome (HPS) Network – https://www.hpsnetwork.org/
  13. The LAM Foundation – https://www.thelamfoundation.org/
  14. Foundation For Sarcoidosis Research –  
    https://www.stopsarcoidosis.org/
  15. Children’s Interstitial Lung Disease (chILD) – http://child-foundation.org/
  16. The American Thoracic Society – https://www.thoracic.org/
  17. American College of Chest Physicians (ACCP) – http://www.chestnet.org/
  18. My COPD Team – https://www.mycopdteam.com/
  19. COPD.net (online community support group) – https://copd.net/
  20. American Academy of Allergy Asthma and Immunology –
    www.aaaai.org/conditions-and-treatments/asthma
  21. Centers for Disease Control and Prevention – www.cdc.gov/asthma
  22. National Heart, Lung, and Blood Institute –
    www.nhlbi.nih.gov/health-topics/asthma
  23. Cystic Fibrosis Foundation – www.cff.org

Cardiovascular Support Resources

  1. American Heart Association – www.americanheart.org
  2. American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) – https://www.aacvpr.org/
  3. Arrhythmia Alliance (A-A) – www.heartrhythmalliance.org
  4. Children’s Cardiomyopathy Foundation – www.childrenscardiomyopathy.org
  5. Dysautonomia Youth Network of America (DYNA) – www.dynakids.org
  6. Heart Rhythm Society (formerly NASPE) – www.hrsonline.org
  7. Hypertrophic Cardiomyopathy Association of America – www.4hcm.org
  8. Arrhythmogenic Right Ventricular Dysplasia (ARVD) – https://my.clevelandclinic.org/health/diseases/16752-arrhythmogenic-right-ventricular-dysplasia-arvd
  9. Office on Women’s Health (OWH) – www.womenshealth.gov/heart-disease-and-stroke

Cardiovascular Support Resources

  1. American Heart Association – www.americanheart.org
  2. American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) – https://www.aacvpr.org/
  3. Arrhythmia Alliance (A-A) – www.heartrhythmalliance.org
  4. Children’s Cardiomyopathy Foundation – www.childrenscardiomyopathy.org
  5. Dysautonomia Youth Network of America (DYNA) – www.dynakids.org
  6. Heart Rhythm Society (formerly NASPE) – www.hrsonline.org
  7. Hypertrophic Cardiomyopathy Association of America – www.4hcm.org
  8. Arrhythmogenic Right Ventricular Dysplasia (ARVD) – https://my.clevelandclinic.org/health/diseases/16752-arrhythmogenic-right-ventricular-dysplasia-arvd
  9. Office on Women’s Health (OWH) – www.womenshealth.gov/heart-disease-and-stroke

Neurological Support Group Resources

  1. Alzheimer’s Association – https://www.alz.org/
  2. BrightFocus Foundation – https://www.brightfocus.org/
  3. The National Institute on Aging (NIA) –https://www.nia.nih.gov/health/alzheimers-disease-research-centers
  4. Alzheimers.gov – https://www.alzheimers.gov/
  5. Dementia Alliance International –https://www.dementiaallianceinternational.org/
  6. Brain Injury Association of America – https://www.biausa.org/
  7. Alzheimer’s Foundation of America (AFA) – https://alzfdn.org/
  8. National Institute of Neurological Disorders and Stroke – https://www.ninds.nih.gov/
  9. The AD Foundation – https://ad.foundation/
  10. UsAgainstAlzheimer’s – https://www.usagainstalzheimers.org/

Genetic Screening Support Group

  1. Find a Genetic Counselor –
    https://www.nsgc.org/p/cm/ld/fid=164
  2. The Genetic Alliance – http://www.geneticalliance.org/
  3. Genomics & Precision Health – https://www.cdc.gov/genomics/gtesting/genetic_counseling.htm
  4. National Organization for Rare Disorders –
    http://www.rarediseases.org/
  5. National Society of Genetic Counselors –https://www.nsgc.org/
  6. Baby’s First Test – https://www.babysfirsttest.org/
  7. RESOLVE: The National Infertility Association – https://resolve.org/what-are-my-options/genetic-screening-and-testing/
  8. CydanAccelerating Rare Genetic Disease Therapies – http://www.cydanco.com/ 

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